There is a company called Rare Patient Voice (LINK BELOW IN BLUE) that does surveys and interviews for people with rare diseases about their medical care, quality, and services. Each time you fill out a questionnaire or survey, you get a bit of financial compensation. About a month ago, patients with Ulcerative Colitis received $250 for just one survey!
When you first sign up, you get a $5 Amazon gift card. Then anyone who signs up and puts your name as a referral – you both get another $5 gift card. I personally have Multiple Sclerosis. My last survey was about 3-5 minutes long and a week later I received a $30 check in the mail! (I only list programs that I know personally work 100% as stated.)
If you do decide to sign up, I’d love it if you put Michelle Scott (firstname.lastname@example.org) as your referral so I can get credit for it!
Some of the many diseases that qualify as “rare” are:
Multiple Sclerosis (MS)
Sickle Cell Disease
Pulmonary Arterial Hypertension (PAH)
Waldenstrom’s Macroglobulinemia (WM)
Duchenne Muscular Dystrophy